I had my 2nd of 3 Comp & Pen appointments yesterday; this one was an appointment for my general health. There were 11 areas that he needed to assess...and he actually did ask the questions (Shocker!!!). I was afforded the opportunity to explain a little more fully my daily struggles. I was able to state that the problems I have are intermittent, not continuous. For instance, the headaches I suffer are not constant, but they come and go depending on how tired I am, how stressed I am, etc. But, they are definitely stroke related because they are actual tightening of muscles that were involved in my decompressive craniotomy. I was also able to tell the Dr. that I don't have tremors all the time, but they are relatively spotty in nature; for instance, when I hold a cup of coffee in my left had, it shakes quite a bit, or when I yawn my left arm tremors and when I go to tie my shoe on my left side, my left foot shakes. But, they are not constant. He explained that, much like a seizure, the tremors are caused by a misfire of a nerve or a fault reception of a signal given by a nerve. The bottom line is this: I felt infinitely more at ease after that appointment because he actually seemed to be concerned with my deficits, even if they are sporadic and not given me a blanket "you don't have those deficits all the time, so you must be ok..." I hope this makes sense, but I really do feel more at ease. Now we will just see what the Decision Review Officer thinks; he is the one who will make the actual determination of my disability. Please pray that everything goes well.
For the last few weeks I have been experiencing some pretty terrible headaches; not the kind that you can relieve by rubbing your temples or taking Tylenol, but headaches that radiate from the back of my head. It seems as though I have tried several things to relieve them: taking naps, lying down on heating pads, taking Tylenol, turning the lights of, etc. but nothing seems to help. Now, I don't have them all the time, only a few days a week and I can tell that they are more from muscle tightness than anything else. I have been instructed to go the ER if they flare up again, because of my past history of headaches before my stroke, but most likely it is due to the muscles that were cut in the back of my head for the Craniotomy. I would say that most days I do not struggle with headaches at all; but, the days I do have headaches they are a doozy. I don't have blurred vision with them or sensitivity to light or sound; it just hurts. As I look back over the past 3+ years I realize...
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